Dr. Scott Standifer
The other day I came across an article called “Aging with Autism.” It talks about adults with autism and working. As my son ages (he is ten now) I more often think about his future and how it will all play out.
So I contacted the Dr. Scott for an interview. Shannon and I discussed the Adult Autism and Employment Guide that he wrote (find it here) as well as his March 3-4, 2011 conference on autism and employment.
Shannon and I talk with Marty Kelly who has twice made the trip to Central America for stem cell transplants for her autistic son. After the first trip, Marty noticed significant gains in many areas and decided to make a recent, repeat trip.
We discuss the process of how stem cells work and the procedure used for her son.
As with any new treatment, please be careful before you try this at home.
For more information, see here and here.
You can follow Marty’s journey on her blog. Oh, and see a story about from her local TV station
Shannon and I talk with Dr. Bob Sears author of the The Autism Book and The Vaccine Book: Making the Right Decision for Your Child.
We cover a range of topics that focus on Autism: Seven Critical Tips Every Parent Needs to Know
More about Dr. Sears from his website:
Robert W. Sears, MD, is a father of three, board-certified in Pediatrics, and a co-author in the Sears Parenting Library. “Dr. Bob”, as he likes to be called by his little patients, earned his medical degree at Georgetown University School of Medicine in 1995. He did his pediatric internship and residency at Children’s Hospital Los Angeles, finishing in 1998. Dr. Bob is the proud father of three active boys, Andrew, age 15, Alex, age 12, and Joshua age 6. He and his wife, Cheryl, reside in Dana Point, CA. In his spare time Dr. Bob enjoys surfing the California waves, mountain biking, playing bass guitar with his teenage son guitarist, and trying to keep up with his three children.
Shannon Johnson and I talk with Megan Drane of Fire Fly Nights Photography. Megan, a professional photographer, has a young son with autism. Realizing that there is a need out there for quality photos of families that have a child with autism, Megan moved into fill that gap.
We discuss her patient, flexible approach she uses to grab some fantastic photos. We also get into the range of emotions and feelings she comes across as she meets parents looking to get, perhaps, their first family photo shoot with a photographer who empathizes with their situation.
I conduct a follow up discussion with Dr. Paul Law about the Interactive Autism Network (IAN). My first podcast with Dr. Law took place three years ago when the program was in its infancy.
Dr. Law also has a son with autism.
We discuss some of the latest studies that have come forth from IAN as well as where it might all lead to in the future.
More about IAN from their Website:
The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people nationwide affected by autism spectrum disorders (ASDs) and hundreds of researchers in a search for answers.
More About Dr. Law:
Paul Law, MD, MPH, MS, FAAP, Director
Paul Law is IAN’s Director. When he was in medical school at Johns Hopkins University, his son was diagnosed with Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS). Since then, Paul’s goal has been to develop shared resources that facilitate autism research.
Dr. Law earned his MD from Johns Hopkins University in 1997 and received a MPH degree from the JHU School of Public Health in the year prior. He completed his pediatric residency in 2000 and a health informatics fellowship in 2005 – both at Johns Hopkins. Dr. Law is a member of the American Academy of Pediatrics, the American Medical Informatics Association, and Delta Omega, the Honorary Society in Public Health.
Dr. Tracy Alloway
Lori Boll and I talk with Dr. Tracy Alloway about working memory versus long term memory. We have an interesting discussion working memory (think short term) and how it relates to people with autism. We also discuss her working memory enhancing program called Jungle Learning.
Here is more about Tracy from her website:
Tracy Packiam Alloway, PhD, is the Director of the Center for Memory and Learning in the Lifespan at the University of Stirling, UK. She is the author of over 75 scientific articles and books on working memory and learning, and has developed the world’s first standardized working-memory tests for educators published by Pearson. Her research has received widespread international coverage, appearing in outlets such as the Guardian, Daily Mail, Scientific American, Forbes, US News, ABC News, and NBC. She is much in demand international speaker in North America, Europe, Asia and Australia. She is an advisor to the World Bank on the importance of working memory.
Autismpodcast your audio connection to autism * Home * About Us * Contact Episode 91 | Dr. Tracy Allow and Jungle Memory [35:47m]:
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Shannon Johnson and I speak with Dr. Susan Wilczynski of the National Autism Center.
We cover a range of topics including evidence based practices. We pay particular attention to an educators’ field guide the National Autism Center put together for educators of children on the autism spectrum. You can see a copy of that guide here.
Here is some more about Dr. Wilczynski from her website: Dr. Wilczynski is the Executive Director of the National Autism Center. In her role as Chair of the National Standards Project, she has worked in collaboration with experts from around the country in order to establish national standards for the treatment of individuals on the autism spectrum. Under Dr. Wilczynski’s leadership, the National Autism Center has recently published Evidence-based Practice and Autism in the Schools. This resource manual for educators is being distributed to school systems across the country. It is the first in a series of manuals to support families, educators, physicians, and service providers.
Max
Zak
Shannon and I talk with Max and Zak of Autism Ambassadors
These two fine young man (along with others) have developed– and are developing — programs in schools around the world designed to help students with autism.
Their program encourages autism awareness and promotes relationships between typical students and those with autism. Zak and Max hope to have well over 100 Autism Ambassador programs up and running before the end of 2010
Contact information:
For more information about songs for autism, check out singsos.org
Shannon Johnson and I speak with Beth Maloney, author of Saving Sammy.
We discuss the relationship between strep infections and OCD.
In Beth’s words:
“When my middle son was twelve, he was diagnosed with Obsessive Compulsive Disorder and then Tourette Syndrome. Confined to our home by the horror of his illness, a lifelong placement seemed his likely fate — until I learned that a strep infection might be the cause (a disorder known as PANDAS). Most doctors said I was wrong; but I was right, and two doctors helped me cure him. He is now fully recovered.“
Technorati Tags: mother, single, author, ocd, pandas, strep
Shannon Johnson and I talk with Dr. Ross Greene, author of The Explosive Child.
We have a wide ranging conversation about “explosive” children and how best to work with children that do not easily transition from one activity to another. This podcast does not specifically apply to children with autism.
More about Dr. Greene from his website :
Ross W. Greene is Associate Clinical Professor in the Department of Psychiatry at Harvard Medical School and originator of the Collaborative Problem Solving (CPS) approach, which was first articulated in his acclaimed book, The Explosive Child. He has authored numerous articles, chapters, and scientific papers on kids with social, emotional, and behavioral challenges and the effectiveness of the CPS model in helping them and their caregivers. His research has been funded by, among others, the Stanley Research Institute, the National Institute on Drug Abuse/National Institutes of Mental Health, the U.S. Department of Education, and the Maine Juvenile Justice Advisory Group.Dr. Greene consults extensively to general and special education schools, inpatient psychiatry units, and residential and juvenile detention facilities, and lectures widely throughout the world. His media appearances include the Oprah Show, Dateline NBC, The Morning Show, Good Morning America, and National Public Radio.
